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2020-01-01

Qiu, Roulin, Schick-Makaroff, Kara, Tang, Leiwen, Wang, Xiyi, Zhang, Qi, Ye, Zhihong

Purpose: This study is aiming to investigate cardiovascular patients’ attitudes towards selfmanagement during hospitalization in China. Patients and Methods: Twenty-nine individuals living with cardiovascular disease from one designated Cardiology Department in Hangzhou, China, were recruited...

2020-01-01

Flynn, Rachel, Schick-Makaroff, Kara, Levay, Adrienne, Greenhalgh, Joanne

A central aspect of any theory-driven realist investigation (synthesis or evaluation) is to develop an initial program theory (IPT). An IPT can be used to frame and understand how, for whom, why, and under what contexts complex interventions work or not. Despite well-established evidence that...

2020-01-01

Anita E. MOLZAHN, Laurene SHEILDS, Anne BRUCE, Kara SCHICK-MAKAROFF, Marcy ANTONIO, Alexander M. CLARK

Background: Most patients with advanced heart failure (HF) are ill-prepared and poorly supported during the end of life (EOL). To date, research has focused primarily on generalized patient accounts of the management or self-care phase of the syndrome. Little research has examined EOL in depth or...

2019-01-01

Osman, Mohamed A., Schick-Makaroff, Kara, Thomas, Stephanie, Bialy, Liza, Featherstone, Robin, Kurzawa, Julia, Zaidi, Deenaz, Okpechi, Ikechi, Habib, Syed, Shojai, Soroush, Jindal, Kailash, Braam, Branko, Keely, Erin, Liddy, Clare, Manns, Braden, Tonelli, Macello, Hemmelgarn, Brenda, Klarenbach, Scott, Bello, Aminu K.

Introduction: Electronic consultation (eConsult)-provider-to-provider electronic asynchronous exchanges of patient health information at a distance-is emerging as a potential tool to improve the interface between primary care providers and specialists. Despite growing evidence that eConsult has...

2019-01-01

Chauvette, Amelia, Schick-Marakoff, Kara, Molzahn, Anita E.

There is a growing movement for research data to be accessed, used, and shared by multiple stakeholders for various purposes. The changing technological landscape makes it possible to digitally store data, creating opportunity to both share and reuse data anywhere in the world for later use. This...

2019-01-01

Schick-Marakoff, Kara, Thummapol, Onouma, Thompson, Stephanie, Flynn, Rachel, Karimi-Dehkordi, Mehri, Klarenbach, Scott, Sawatzky, Richard, Greenhalgh, Joanne

Background: Patient-reported outcomes and experience measures (jointly referred to here as PROs) are internationally recognized as a means for patients to provide information about their quality of life, symptoms, and experiences with care. Although increasingly recognized as key to improving the...

2019-08-14

Schick-Marakoff, Kara, Tate, Kaitlyn, Molzahn, Anita

Background: Use of patient-reported outcome measures (PROM) in clinical practice can offer clinicians important information about the impact of illness on patients and their quality of life. Electronic reporting of patient-reported outcomes (ePROs) provide quick access of this information to the...

2019-10-30

Marcy G. Antonio, Kara Schick-Makaroff, James M. Doiron, Laurene Sheilds, Lacie White, Anita Molzahn

Data repositories can support secure data management for multi-institutional and geographically dispersed research teams. Primarily designed to provide secure access, storage, and sharing of quantitative data, limited focus has been given to the unique considerations of data repositories for...

2018-01-01

Sawatzky, Richard, Laforest, Esther, Schick-Makaroff, Kara, Stajduhar, Kelli, Reimer-Kirkham, Sheryl, Krawczyk, Marian, Öhlén, Joakim, McLeod, Barbara, Hilliard, Neil, Tayler, Carolyn, Cohen, S. Robin

Background: Quality of life (QOL) assessment instruments, including patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs), are increasingly promoted as a means of enabling clinicians to enhance person-centered care. However, integration of these instruments...

2018-09-28

Osman, Mohamed A., Schick-Makaroff, Kara, Thompson, Stephanie, Featherstone, Robin, Bialy, Liza, Kurzawa, Julia, Okpechi, Ikechi G., Habib, Syed, Shojai, Soroush, Jindal, Kailash, Klarenbach, Scott, Bello, Aminu K.

Introduction: Electronic consultations (eConsult), asynchronous exchanges of patient health information at a distance, are increasingly used as an option to facilitate patient care and collaboration between primary care providers and specialists. Although eConsult has demonstrated success in...