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Daughters of mothers with Multiple Sclerosis: their experiences of play Open Access


Other title
Parental Disability
Young Caregivers/Carers
Multiple Sclerosis
Family systems theory
Type of item
Degree grantor
University of Alberta
Author or creator
Jonzon, Alison Jill
Supervisor and department
Goodwin, Donna (Faculty of Physical Education and Recreation)
Examining committee member and department
Rinaldi, Christina (Department of Educational Psychology, Faculty of Education)
Spencer-Cavaliere, Nancy (Faculty of Physical Education and Recreation)
Faculty of Physical Education and Recreation

Date accepted
Graduation date
Master of Arts
Degree level
This study described the play experiences of daughters who were caregivers to their mothers with multiple sclerosis (MS). The experiences of four Canadian-Caucasian women aged 19-26 were captured using phenomenological methods of individual and focus group interviews, field notes, and artefacts. Three themes with supporting sub-themes emerged: (a) being a good daughter, (b) blurred relationship boundaries, and (c) encumbered play. Caregiving for their mothers was part of being a good daughter. Excessive caring duties changed their roles from being daughters to caregivers and contributed to feelings of maturity over peers. Their mother-daughter relationship boundaries were blurred and the participants wished to spend more time as daughters. Play, although sometimes limited, was highly valued and provided an escape from caregiving. Using family systems theory to interpret the findings, it was concluded that support for families living with MS would release children from caregiving duties so rounded childhood play could be experienced.
License granted by Alison Jonzon ( on 2010-09-28T19:35:01Z (GMT): Permission is hereby granted to the University of Alberta Libraries to reproduce single copies of this thesis and to lend or sell such copies for private, scholarly or scientific research purposes only. Where the thesis is converted to, or otherwise made available in digital form, the University of Alberta will advise potential users of the thesis of the above terms. The author reserves all other publication and other rights in association with the copyright in the thesis, and except as herein provided, neither the thesis nor any substantial portion thereof may be printed or otherwise reproduced in any material form whatsoever without the author's prior written permission.
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