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2020-02-01
SSHRC IDG awarded 2020: Building on research on the use of the medically scanned body to create artistic prints, sculptures and installations, I will work with radiologists and computer scientists to create two art installations, My Data Body, which focuses on representing by own medical and...
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Ocular gene transfer communications: Developing ethical frameworks for phase I choroideremia clinical trials
DownloadSpring 2013
I investigate how to ethically communicate about a phase I gene transfer trial for choroideremia, a blinding retinopathy, in light of this novel biotechnology’s portrayal as a potential ‘cure’. I analyzed gene transfer communications in three contexts: (1) interviews with clinicians (n=15),...
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Ocular Gene Transfer in the Spotlight: Implications of Newspaper Content for Clinical Communications
Download2014-10-24
Bubela, Tania, Benjaminy, Shelly
Background Ocular gene transfer clinical trials are raising hopes for blindness treatments and attracting media attention. News media provide an accessible health information source for patients and the public, but are often criticized for overemphasizing benefits and underplaying risks of novel...
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2015-10-15
SSHRC Awarded IG 2016: My research is directed at clarifying the familiar, but poorly understood notions of passion, power and representation. These concepts play distinct roles in diverse branches of philosophy, but they intersect naturally in several places, and examined together, they may...
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Spring 2013
PURPOSE AND PROBLEM: Neonatology, the study of the newborn, marks the moment when the infant enters the world and encounters the parent. As the branch of medicine concerned with caring for this new child, neonatology facilitates the process of receiving the child. It is after the delivery, the...
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Fall 2012
The purpose of this investigation is to formulate a theory of change. To this end, I first explore what goal(s) can productively inform a wide range of struggles. I argue in favour of an experimental ethics tentatively geared towards non-domination --a way of organising relations where parties...