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2013-01-01

Caulfield, Timothy, Chandrasekharan, Subhashini, Joly, Yann, Cook-Deegan, Robert

There has been much investment in research on the ethical, legal and social issues (ELSI) associated with genetic and genomic research. This research should inform the development of the relevant policy. So far, much of the relevant policy - such as in the areas of patents, genetic testing and...

2014

Ollenberger, Adam, Ogbogu, Ubaka, Borry, Pascal, Bergmann, Manuela, Caulfield, Timothy, Nobile, Helene, Toews, Maeghan

Background. Biobanks are an important research resource that provides researchers with biological samples, tools and data, but have also been associated with a range of ethical, legal and policy issues and concerns. Although there have been studies examining the views of different stakeholders,...

2014-10-24

Miller, Fiona A., Hogarth, Stuart, Evans, Jim, McCabe, Christopher, Pullman, Daryl, Joly, Yann, Szego, Michael J., Bubela, Tania, Fishman, Jennifer, Sankar, Pamela, Cook-Deegan, Robert, Biesecker, Barbara, Ravitsky, Vardit, Borry, Pascal, K. Cho, Mildred, Ungar, Wendy, J., Ossorio, Pilar, Kato, Kazuto, Wilson, Brenda, McGuire, Amy, Soo-Jin Lee, Sandra, Caulfield, Timothy, Rothenberg, Karen, Rousseau, Francois, Etchegary, Holly, Carroll, June C.

The cost of whole genome sequencing is dropping rapidly. There has been a great deal of enthusiasm about the potential for this technological advance to transform clinical care. Given the interest and significant investment in genomics, this seems an ideal time to consider what the evidence tells...