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A Pediatric Nurse Practitioner's initiative to support parents of children undergoing neurosurgical care: The Neurosurgery Kids Fund Website Evaluation
DownloadFall 2014
Parent with children undergoing neurosurgery need access to specialized information as well as support resources. The public is becoming more active in managing their own health care and they often turn to the Internet as a starting point in their quest for health information resources. The...
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A pilot study on the health related quality of life of symptomatic pediatric patients with celiac disease
DownloadSpring 2011
Background: Celiac disease affects 1% of the population and the only treatment for CD is life-long adherence to a gluten-free diet, this affects every aspect of life including emotional, social, physical and psychological which in turn has an effect on patient quality of life. Objective: This...
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Developing a Patient-Driven Arts-Based Knowledge Translation Tool for Parents of Children with Asthma
DownloadSpring 2016
Background: Family-centered education is critical to managing childhood asthma, the most common chronic disease of childhood in North America. Parents are largely responsible for the day-to-day management of their child’s asthma; as such, finding effective ways to educate parents about asthma is...
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Identifying Major Depressive Symptoms and Major Depressive Episodes in Adolescents with Cancer
DownloadFall 2015
Cancer is the leading cause of death from disease among adolescents in Canada. Although cancer is a well-researched disease process in the medical and nursing literature, adolescence is relatively understudied, with minimal evidence on strategies to promote healthy emotional adjustment...
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Oncology Patients’ Experiences of Using Electronic Patient Portals and Other Online Tools to Support Care and Treatment
DownloadSpring 2022
With the current proliferation of clinical information technologies in Canada, patient portals and other online tools are becoming increasingly adopted in healthcare. Many people use the Internet for health-related purposes to connect with peer support groups and read about their medical...
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Symptoms and quality of life assessment in ambulatory oncology: the evaluation of a clinical assessment tool
DownloadFall 2009
This study addressed gaps in the literature regarding the lack of information about the degree and extent of the relationships among symptom burden, specific symptoms, and health-related quality of life (HRQL). The sample included 89 adults receiving care for colorectal cancer in an outpatient...