A pilot study on the health related quality of life of symptomatic pediatric patients with celiac disease

• Author / Creator

  Samuel, Tarah M

• Background:
  Celiac disease affects 1% of the population and the only treatment for CD is life-long adherence to a gluten-free diet, this affects every aspect of life including emotional, social, physical and psychological which in turn has an effect on patient quality of life.
  Objective:
  This pilot study is an effort in understanding the quality of life in the pediatric CD population and is a guide for a future, large sample research study.
  Design & Methods:
  Thirteen children diagnosed with CD by intestinal biopsy (mean 6 months) and their parent pair were asked to complete a generic QoL questionnaire (EQ-5D-CY) and a disease-specific questionnaire (TACQoL-CD).
  Results:
  The overall QoL was higher on the generic questionnaire, while the effects of CD and the GFD resulted in a lower quality of life as determined by the TACQoL-CD. Future research with a large sample at multiple timepoints is imperative.

• Subjects / Keywords

  • Celiac disease
  • Quality of life
  • Pediatrics

• Graduation date

  Spring 2011

• Type of Item

  Thesis

• Degree

  Master of Nursing

• DOI

  https://doi.org/10.7939/R3BW4F

• License

  This thesis is made available by the University of Alberta Libraries with permission of the copyright owner solely for non-commercial purposes. This thesis, or any portion thereof, may not otherwise be copied or reproduced without the written consent of the copyright owner, except to the extent permitted by Canadian copyright law.