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Exploring the involvement of adults with Autism Spectrum Disorder (ASD) in developing ASD research

  • Author / Creator
    Jivraj, Jamil
  • Participatory research (PR) is a research approach which involves partnerships between researchers and those affected by the issues under study. These partnerships lead to the production of research that is relevant and applicable to those involved in the process. Despite the potential value of this approach, few studies have involved individuals with Autism Spectrum Disorder (ASD) or other neurodevelopmental disorders in the development of research. This thesis includes two studies: a scoping review examining the involvement of individuals with ASD and other neurodevelopmental disorders in development of research, and a qualitative study conducted with adults with ASD exploring their preferred process of ASD research involvement. These studies revealed different perspectives among researchers and adults with ASD toward research involvement which need to be resolved in order to develop genuine partnerships of trust and research productivity.

  • Subjects / Keywords
  • Graduation date
    2014-06
  • Type of Item
    Thesis
  • Degree
    Master of Science
  • DOI
    https://doi.org/10.7939/R3067K
  • License
    This thesis is made available by the University of Alberta Libraries with permission of the copyright owner solely for non-commercial purposes. This thesis, or any portion thereof, may not otherwise be copied or reproduced without the written consent of the copyright owner, except to the extent permitted by Canadian copyright law.
  • Language
    English
  • Institution
    University of Alberta
  • Degree level
    Master's
  • Department
    • Medical Sciences-Paediatrics
  • Supervisor / co-supervisor and their department(s)
    • Zwaigenbaum, Lonnie (Pediatrics)
  • Examining committee members and their departments
    • Netwon, Mandi (Pediatrics)
    • Hartling, Lisa (Pediatrics)
    • Nicholas, David (Social Work)
    • Vohra, Sunita (Pediatrics)