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Providing the Best Sleep Bedroom Environment for Children with Cerebral Palsy

  • Author / Creator
    Dutt, Risha
  • Sleep is an active process, essential for physical, emotional and cognitive development of
    children. Between 23-46% of children with cerebral palsy (CP) have sleep problems. Often sleep
    problems go undiagnosed and undertreated in spite of the serious impact of sleep deficiency on
    children’s health and development. Interventions, if they are offered, are most often
    pharmacological. However medication side effects are a significant concern and the evidencebase is lacking. There is a need for effective non-pharmacological intervention to address sleep
    problems.
    Objectives: 1) To determine if providing parents with sleep education and problem solving
    strategies, in the form of a manual, increases parental knowledge. 2) To determine if increases in
    knowledge then translate to parents taking actions to address features in the bedroom that
    negatively affect sleep.
    Methods: This pilot study used a single-case series design. Recruitment of child/parent
    participants was through community partners. Baseline and 6 week follow-up data collection
    included the Parental Sleep Environment Knowledge Questionnaire (PSEKQ), Parental
    Interactive Bedtime Behavior Scale, Child Sleep Habit Questionnaire, Parent Knowledge of
    Healthy Sleep and objective sleep actigraphy. Parents received the Children’s Best Bedroom for
    Sleep (CBBES) manual (including basic sleep science information, a self-assessment tool, and
    ii
    environmental modification recommendations) as the intervention post-baseline. Descriptive
    statistics were used for analysis.
    Results: There were 6 parent/child participants. As expected, minimal change was demonstrated
    in parents sleep behavioural measures. Scores on the Parent Sleep Environment Knowledge
    Questionnaire (PSEKQ) improved slightly (66.66% at baseline to 78.33% at follow-up). Also,
    the post-intervention results using the bedroom environment assessment checklist provided in the
    CBBES manual demonstrated improved parent ability to assess their child’s bedroom and act to
    correct problems.
    Conclusion: Results support that providing parents with a sleep environment psycho-education
    manual to build knowledge and skills for addressing environmental components of their child’s
    sleep problems. This research is innovative and will benefit not only children with cerebral palsy
    and their parents but may also apply to children with other health conditions.

  • Subjects / Keywords
  • Graduation date
    Fall 2015
  • Type of Item
    Thesis
  • Degree
    Master of Science
  • DOI
    https://doi.org/10.7939/R3RR1PZ7V
  • License
    This thesis is made available by the University of Alberta Libraries with permission of the copyright owner solely for non-commercial purposes. This thesis, or any portion thereof, may not otherwise be copied or reproduced without the written consent of the copyright owner, except to the extent permitted by Canadian copyright law.