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"Her world gets smaller and smaller with nothing to look forward to”: Dimensions of social inclusion and exclusion among rural dementia care networks
Download2011
Clark, K., DeForge, R., Forbes, D.A., Ward-Griffin, C., Mendelsohn, M., St-Amant, O., Kloseck, M.
The purpose of this research was to critique the nature of rural dementia care from the perspectives of persons with dementia, their family caregivers and home care providers through a social inclusion/exclusion lens. A critical gerontology approach within a human rights framework (Townsend,...
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2012
Duggleby, W., Williams, A., McIntosh, M.J., Eby, J., Leipert, B.
Most informal caregivers in Canada are women (Cranwick, 1997; Fast, Eales & Keating, 2001; Kaden & MacDonald, 1990; MacLean, Cairn, & Sellick, 1998). Women caring for dying persons at the end-of-life have been identified in the literature as those most likely to experience negative physical and...
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A Mixed Methods Study of Hope, Transitions, and Quality of Life in Family Caregivers of Persons with Alzheimer’s Disease
Download2011
Ghosh, S., Swindle, J., Peacock, S., Duggleby, W.
Background: Several research studies have reported the poor quality of life of family caregivers of persons with Alzheimer’s disease (AD). However, factors that influence their quality of life have not been clearly defined. The purpose of this study was to examine factors associated with the...
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Accelerating client-driven care: Pilot study for a social interaction approach to knowledge translation.
Download2008
Ooudshoorn, A., Forbes, D., Leipert, B., King, M.L., Kloseck, M., McWilliam, C., Ward-Griffin, C., Kothari, A., Ferguson, K.
This study piloted a knowledge translation (KT) intervention promoting evidence-based home care through social interaction.A total of 33 providers organized into 5 heterogeneous, geographically defined action groups participated in 5 researcher-facilitated meetings based on the participatory...
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Development of a “Changes Toolkit” for Rural Older Palliative Patients and Their Family Caregivers
Download2012
Goodridge, Donna, Duggleby, W., Cooper, Lori J., Williams, A., Taniguichi, A., Leipert, B., Wilson, D., Marshall,D.
A “Changes Toolkit” was developed to help rural older palliative care patients and their caregivers deal with multiple concurrent transitions that cause disruption in their lives. The purpose of this article is to describe the development of the “Changes Toolkit” to support rural palliative...
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2010
Cunningham, S., Holtslander, L., Steeves, M., Duggleby-Wenzel, S., Duggleby, W.
This study used van Dijk's critical-discourse approach to explore the current societal discourse on hope and to explore the hope of older terminally ill cancer patients, their significant others and primary nurse. Forty-three newspaper articles dealing with hope and cancer were collected and...
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Evaluation of the living with hope program for rural women caregivers of persons with advanced cancer.
Download2013
Hampton, M., Cooper, D., Holstlander, L., Ghosh, S., Williams, A., Duggleby, W., McLean, R. T., Hallstrom, L.
Background Hope has been identified as a key psychosocial resource among family caregivers to manage and deal with the caregiver experience. The Living with Hope Program is a self-administered intervention that consists of watching an international award winning Living with Hope film and...
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2013
Wilson, D., Magnus, R., Hewitt, J., Barnes, N., Vihos, J., Peterson, K.
This mixed-methods study addressed the problem that although waiting placement is considered a major hospital utilization issue, minimal evidence exists to highlight the extent of it and the personal impact of waiting placement. An analysis of two years of complete hospital data for the Canadian...
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Fitting a round peg into a square hole: Exploring issues, challenges, and strategies for solutions in rural home care settings
Download2007
McWilliams, C., Kothari, A., Kloseck, M., Oudshoorn, A., Leipert, B., Forbes, D.
While home care has received much attention lately, little research to date has drawn on the experiences of rural multidisciplinary teams providing in-home care. Home care is typically studied in urban areas, with the tendency to expand urban practices to rural settings, often with problematic...