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2012
Duggleby, W., Williams, A., McIntosh, M.J., Eby, J., Leipert, B.
Most informal caregivers in Canada are women (Cranwick, 1997; Fast, Eales & Keating, 2001; Kaden & MacDonald, 1990; MacLean, Cairn, & Sellick, 1998). Women caring for dying persons at the end-of-life have been identified in the literature as those most likely to experience negative physical and...
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2014
Keating, N., Wilson, D.M., Williams, B.E.C.
This report documents the findings of a mixed-methods study focused on the advanced directives of 182 residents of three LTC facilities in southern Ontario, Canada. Although almost all had a completed advance directive within 3 months of death, most did not have a palliative designation or...
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An Examination of Palliative or End-of-Life Care Education in Introductory Nursing Programs across Canada
Download2011
Hewitt, J.A., Goodwin, B.L., Wilson, D.M.
An investigation was done to assess for and describe the end-of-life education provided in Canadian nursing programs to prepare students for practice. All 35 university nursing schools/faculties were surveyed in 2004; 29 (82.9%) responded. At that time, all but one routinely provided this...
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Design and introduction of a quality of life assessment and practice support system: perspectives from palliative care settings
Download2018-01-01
Sawatzky, Richard, Laforest, Esther, Schick-Makaroff, Kara, Stajduhar, Kelli, Reimer-Kirkham, Sheryl, Krawczyk, Marian, Öhlén, Joakim, McLeod, Barbara, Hilliard, Neil, Tayler, Carolyn, Cohen, S. Robin
Background: Quality of life (QOL) assessment instruments, including patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs), are increasingly promoted as a means of enabling clinicians to enhance person-centered care. However, integration of these instruments...
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Developing a living with hope program for caregivers of family members with advanced cancer.
Download2007
Duggleby, Wendy, Holtslander, Lorraine, Williams, Allison, Degner, Lesley, Cammer, Allison, Wright, Karen
A theory-based intervention, the Living with Hope Program (LWHP), was designed to foster hope in caregivers of family members with advanced cancer. The LWHP was developed from qualitative data and using Harding and Higginson's recommendations for family caregiver interventions as a guide. The...
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2010
Cunningham, S., Holtslander, L., Steeves, M., Duggleby-Wenzel, S., Duggleby, W.
This study used van Dijk's critical-discourse approach to explore the current societal discourse on hope and to explore the hope of older terminally ill cancer patients, their significant others and primary nurse. Forty-three newspaper articles dealing with hope and cancer were collected and...
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Evaluation of the living with hope program for rural women caregivers of persons with advanced cancer.
Download2013
Hampton, M., Cooper, D., Holstlander, L., Ghosh, S., Williams, A., Duggleby, W., McLean, R. T., Hallstrom, L.
Background Hope has been identified as a key psychosocial resource among family caregivers to manage and deal with the caregiver experience. The Living with Hope Program is a self-administered intervention that consists of watching an international award winning Living with Hope film and...
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Family members providing home-based palliative care to older adults: The enactment of multiple roles
Download2008
Clemmer, S., Ward-Griffin, C., Forbes, D.
Canadians are experiencing increased life expectancy and chronic illness requiring end-of-life care. There is limited research on the multiple roles for family members providing home-based palliative care. Based on a larger ethnographic study of client-family-provider relationships in home-based...
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Harmonizing hope: A grounded theory study of the experience of hope of registered nurses who provide palliative care in community settings
Download2011
Objective: The purpose of this study was to explore the hope experience of registered nurses (RNs) who provide palliative care services in community settings. The specific aims of the study were to (1) describe their hope experience, (2) develop a reflexive understanding of the processes of their...
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Hope against hope: Exploring the hopes and challenges of rural female caregivers of persons with advanced cancer.
Download2013
Thomas, R., Hallstrom, L., Williams, A., Cooper, R., Holtslander, L., Eby, J., Duggleby, W.
Background This paper focuses on the qualitative component of a study evaluating a hope intervention, entitled Living with Hope Program (LWHP), designed to foster hope in female caregivers of family members living with advanced cancer. The purpose of this research is to share, in the form of a...