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2014
Ollenberger, Adam, Ogbogu, Ubaka, Borry, Pascal, Bergmann, Manuela, Caulfield, Timothy, Nobile, Helene, Toews, Maeghan
Background. Biobanks are an important research resource that provides researchers with biological samples, tools and data, but have also been associated with a range of ethical, legal and policy issues and concerns. Although there have been studies examining the views of different stakeholders,...
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2014-11-12
Bubela, Tania, Taylor, Benjamin
In 2004, the International Human Genome Sequencing Consortium published its scientific description of the finished human genome sequence containing 20,000 to 25,000 protein-coding genes. The Human Genome Project (HGP), through political rhetoric and publicity, was portrayed as an end in itself,...
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Ocular Gene Transfer in the Spotlight: Implications of Newspaper Content for Clinical Communications
Download2014-10-24
Bubela, Tania, Benjaminy, Shelly
Background Ocular gene transfer clinical trials are raising hopes for blindness treatments and attracting media attention. News media provide an accessible health information source for patients and the public, but are often criticized for overemphasizing benefits and underplaying risks of novel...
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2012
Presentation given at the 2012 University of Alberta Campus Data Summit, March 22-23, 2012.
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2012-03-23
Presentation given at the 2012 University of Alberta Campus Data Summit, March 22-23, 2012.
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2014-11-12
Caulfield, Timothy, Bubela, Tania, Fernando, Kanchana
Media coverage of politics often comments on the decline of the public’s trust in government institutions. There is a notion that public trust of government is steadily decreasing. Many factors contribute to this reduced trust, including: unhappiness with government performance, negativity of...
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Reflections on the Cost of "Low-Cost" Whole Genome Sequencing: Framing the Health Policy Debate
Download2014-10-24
Miller, Fiona A., Hogarth, Stuart, Evans, Jim, McCabe, Christopher, Pullman, Daryl, Joly, Yann, Szego, Michael J., Bubela, Tania, Fishman, Jennifer, Sankar, Pamela, Cook-Deegan, Robert, Biesecker, Barbara, Ravitsky, Vardit, Borry, Pascal, K. Cho, Mildred, Ungar, Wendy, J., Ossorio, Pilar, Kato, Kazuto, Wilson, Brenda, McGuire, Amy, Soo-Jin Lee, Sandra, Caulfield, Timothy, Rothenberg, Karen, Rousseau, Francois, Etchegary, Holly, Carroll, June C.
The cost of whole genome sequencing is dropping rapidly. There has been a great deal of enthusiasm about the potential for this technological advance to transform clinical care. Given the interest and significant investment in genomics, this seems an ideal time to consider what the evidence tells...
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Regulation of Traditional Medicine (Be Careful What You Wish For)
2017-10-27
Dr. Heather Boon, Professor and Dean, Leslie Dean Faculty of Pharmacy, University of Toronto speaks to the process of regulation of traditional Chinese Medicine and acupuncture in Ontario and the unexpected consequences of regulation on some members of the practitioner community. Dr. Boon...
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Science Communication in Transition: Genomics Hype, Public Engagement, Education and Commercialization Pressures
Download2014-11-14
This essay reports on the final session of a 2-day workshop entitled ‘Genetic Diversity and Science Communication’, hosted by the CIHR Institute of Genetics in Toronto, April 2006. The first speaker, Timothy Caulfield, introduced the intersecting communities that promulgate a ‘cycle of hype’ of...
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2014-10-29
Caulfield, Timothy, Rachul, Christen, Zarzeczny, Amy, Bubela, Tania
The interest and controversy generated by stem cell research over the past decade has raised hopes for scientific breakthroughs and debates regarding the limits of ethical research. In particular, the debate surrounding the moral status of the embryo has received considerable attention in...