Through My Looking Glass: A Woman's Experience of Living Long-Term with Invisible Undiagnosed Chronic Physical Illness and Pain and its Impact Upon Her Sense of Self

• Author / Creator

  Janis Louise Stewart

• This heuristic thesis explores the experience of a woman living for decades with invisible, undiagnosed, chronic physical illness and pain. With ethical care and respect for confidentiality, the researcher recalls incidents of trauma in her early life that informed the development of her self. The paper describes the complex effects of living with symptoms of undiagnosed illness for many years. Complicating factors include the lack of a support network, and revisions of services in the local health care system. The author discusses her experience of the prevailing attitudes that disempower women who advocate on their own behalf in the legal system. Concurrent disenfranchised losses, including intimate relationships and role identity, are also described. Circumstances that contribute to marginalization include unemployment, divorce, and poverty. The thesis explores insights that emerged from the period of intense heuristic inquiry. It provides ideas for potential future research as well as possible personal, community and political activism. The thesis work is complemented by a set of five piano compositions.

• Subjects / Keywords

  • Self advocacy
  • Heuristic research
  • Transformation, spirituality
  • Long term chronic pain
  • Marginalization
  • Tacit knowledge

• Graduation date

  2011

• Type of Item

  Thesis

• Degree

  Master of Arts in Pastoral Psychology and Counselling

• DOI

  https://doi.org/10.7939/R3C24R25W

• License

  This thesis is made available by the University of Alberta Libraries with permission of the copyright owner solely for non-commercial purposes. This thesis, or any portion thereof, may not otherwise be copied or reproduced without the written consent of the copyright owner, except to the extent permitted by Canadian copyright law.