Best Practices for Working Creatively with Personal Data

• Author(s) / Creator(s)

  • Oliver, Marilène
  • Hamilton, Alissa
  • Ingram, Katrina

• Know Thyself as a Virtual Reality (KTVR) is an interdisciplinary project that focuses on the ethics and aesthetics of the use of sensitive personal data and virtual reality. This is an exciting, emerging field which holds huge creative potential and striking opportunities for producing new medical knowledge. Hyper- personal forms of data, such as medical scan data and biometrics, are however fraught with issues related to personal privacy and human rights, especially in relation to artificial intelligence. These best practice for working creatively with sensitive personal data start with an overview of the different data protections and then builds on existing visual research ethics guides to suggest a series of reflective questions around data anonymization, provenance, representation, consent, access and licensing, participation & authorship, sustainability, dissemination & audience and artificial intelligence. Discussions in the guidelines centre around existing artworks by contemporary artists who work with sensitive data, along with the research creation works My Data Body and Your Data Body that are being created as part of the KTVR project.

• Date created

  2022-01-01

• Subjects / Keywords

  • ethics
  • aesthetics
  • visual research
  • sensitive data
  • artists
  • virtual reality
  • anonymization
  • provenance
  • representation
  • consent
  • access and licensing
  • participation and authorship
  • sustainability
  • dissemination and audience
  • artificial intelligence (AI)
  • Know Thyself as a Virtual Reality (KTVR)

• Type of Item

  Report

• DOI

  https://doi.org/10.7939/r3-zpwd-qt15

• License

  Attribution-NonCommercial 4.0 International