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Facets of parenting a child with hypoplastic left heart syndrome

  • Author(s) / Creator(s)
  • The purpose of the study was to conceptualize the needs of parents of young children with hypoplastic left heart syndrome (HLHS) to provide a theoretical framework to informthe development of future parent interventions. Participants were parents and grandparents (n = 53) of 15 young children who had undergone the Sano surgical approach for HLHS. Analysis of recorded and transcribed single interviews with each participant was done as directed by interpretive description methodology. A model of five facets of parenting was conceptualized. These included survival parenting, “hands-off” parenting, expert parenting, uncertain parenting, and supported parenting. The facets of parenting delineated through this study provide a theoretical framework that can be used to guide the development and evaluation of interventions for parents of children with complex congenital heart disease and potentially other life-threatening conditions. Each facet constitutes a critical component for educational or psychosocial intervention for parents.

  • Date created
  • Subjects / Keywords
  • Type of Item
    Article (Published)
  • DOI
  • License
    Attribution 3.0 International
  • Language
  • Citation for previous publication
    • Rempel, G., Rogers, L. G., Ravindran, V., & Magill-Evans, J. (2012). Facets of parenting a child with hypoplastic left heart syndrome. Nursing Research and Practice, Article ID 714178, 1-9. doi:10.1155/2012/714178.