Individualized Health Related Quality of Life Measures: their use in children and their psychometric properties

  • Author / Creator
    Ishaque, Sana
  • Health related quality of life (HRQL) has recently been recognized as an essential outcome of patient-centered care. Individualized HRQL (iHRQL) measures propose a patient-centered approach to HRQL measurement; these measures allow patients to nominate areas of life that are important and then score them from own perspective. The Measure Yourself Medical Outcome Profile (MYMOP) and four of its adaptations are adult iHRQL measuers; in this thesis they were critically appraised and a systematic review was conducted to identify any comparable pediatric measures. Reporting of the validation of MYMOP and its adaptations were inconsistent. Although pediatric iHRQL measures were identified, none of these measures met all currently recommended quality criteria for measurement properties. The available pediatric literature on iHRQL measures does not support their use in children without further validation work. In addition, reported HRQL definitions were heterogeneous, limiting their external validity.

  • Subjects / Keywords
  • Graduation date
  • Type of Item
  • Degree
    Master of Science
  • DOI
  • License
    This thesis is made available by the University of Alberta Libraries with permission of the copyright owner solely for non-commercial purposes. This thesis, or any portion thereof, may not otherwise be copied or reproduced without the written consent of the copyright owner, except to the extent permitted by Canadian copyright law.
  • Language
  • Institution
    University of Alberta
  • Degree level
  • Department
  • Specialization
    • Clinical Epidemiology
  • Supervisor / co-supervisor and their department(s)
  • Examining committee members and their departments
    • Charlotte Paterson (School of Social and Community Medicine, University of Bristol)
    • Jeffrey A. Johnson (Department of Public Health Sciences)
    • Sunita Vohra (Department of Pediatrics)
    • Linda Carroll (Department of Public Health Sciences)