Individualized Health Related Quality of Life Measures: their use in children and their psychometric properties

• Author / Creator

  Ishaque, Sana

• Health related quality of life (HRQL) has recently been recognized as an essential outcome of patient-centered care. Individualized HRQL (iHRQL) measures propose a patient-centered approach to HRQL measurement; these measures allow patients to nominate areas of life that are important and then score them from own perspective. The Measure Yourself Medical Outcome Profile (MYMOP) and four of its adaptations are adult iHRQL measuers; in this thesis they were critically appraised and a systematic review was conducted to identify any comparable pediatric measures. Reporting of the validation of MYMOP and its adaptations were inconsistent. Although pediatric iHRQL measures were identified, none of these measures met all currently recommended quality criteria for measurement properties. The available pediatric literature on iHRQL measures does not support their use in children without further validation work. In addition, reported HRQL definitions were heterogeneous, limiting their external validity.

• Subjects / Keywords

  • Pediatrics
  • Individualized
  • Quality of life
  • Health related quality of life
  • Patient-specific
  • Patient-centered
  • Psychometric properties
  • Domain specific
  • Patient-generated

• Graduation date

  Fall 2012

• Type of Item

  Thesis

• Degree

  Master of Science

• DOI

  https://doi.org/10.7939/R3XD3H

• License

  This thesis is made available by the University of Alberta Libraries with permission of the copyright owner solely for non-commercial purposes. This thesis, or any portion thereof, may not otherwise be copied or reproduced without the written consent of the copyright owner, except to the extent permitted by Canadian copyright law.