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An Inquiry into the Education and School Experiences of Siblings of Seriously Ill Children Open Access


Other title
narrative inquiry
siblings of sick children
sick children
Type of item
Degree grantor
University of Alberta
Author or creator
Moyes, Jessica, A. S.
Supervisor and department
Dr. Lynette Shultz (Education Policy Studies)
Examining committee member and department
Dr. Joe da Costa (Education Policy Studies)
Dr. Lynette Shultz (Education Policy Studies)
Dr. Jean D. Clandinin (Elementary Education)
Department of Educational Policy Studies
Educational Administration and Leadership
Date accepted
Graduation date
Master of Education
Degree level
The education and school experiences of siblings of seriously ill children are greatly affected when the family of an ill child is required to travel for life saving treatment. This study inquired into the narratives of the children as temporary and uniquely challenged students in Alberta to investigate the research puzzle of how school age siblings of seriously ill children perceive and make sense of their school and education experiences when a child in the family becomes seriously ill and must travel for medical care. Conversations with the students allowed one to locate their perceptions and meanings at the centre of research and within the larger conversation about education policies and practices. Utilizing a children’s rights lens, the research considered the viewpoints of the students regarding their respective educational journeys and subsequent needs against the considerations and resources actually made available. Together, the stated educational requirements, changing priorities and the demands on the child allowed for the research to provide a comprehensive collection of policy, practice and research recommendations to be put forth for consideration. Consistent among them, however, is the need to involve the child in the conversations directly affecting them.
Permission is hereby granted to the University of Alberta Libraries to reproduce single copies of this thesis and to lend or sell such copies for private, scholarly or scientific research purposes only. Where the thesis is converted to, or otherwise made available in digital form, the University of Alberta will advise potential users of the thesis of these terms. The author reserves all other publication and other rights in association with the copyright in the thesis and, except as herein before provided, neither the thesis nor any substantial portion thereof may be printed or otherwise reproduced in any material form whatsoever without the author's prior written permission.
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