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- 2Congenital heart disease
- 2Hypoplastic left heart syndrome
- 1Cardio-thoracic nursing
- 1Child nursing
- 1Early intervention
In this paper, we argue for the concurrent and comparative use of genograms and ecomaps in family caregiving research. A genogram is graphic portrayal of the composition and structure of one’s family and an ecomap is a graphic portrayal of a person or family’s social relationships. Although...
Is "treat your child normally" helpful advice for parents of survivors of treatment of hypoplastic left heart syndrome?Download
BACKGROUND: Developing technology affords children with complex congenitally malformed hearts a chance for survival. Parents gratefully pursue life-saving options on behalf of their children, despite the risks to the life of their child, and uncertainty about outcomes. Little is known about how...
The purpose of this study is to describe the process of parenting a child with life-threatening heart disease. Despite advances in pediatric cardiac sciences, hypoplastic left heart syndrome remains difficult and controversial to treat. The Norwood surgical approach is a developing technology,...