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Skip to Search Results- 4Hypoplastic left heart syndrome
- 2Congenital heart disease
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Safeguarding precarious survival: Parenting children who have life-threatening heart disease
Download2007
Rempel, Gwen R., Harrison, Margaret J.
The purpose of this study is to describe the process of parenting a child with life-threatening heart disease. Despite advances in pediatric cardiac sciences, hypoplastic left heart syndrome remains difficult and controversial to treat. The Norwood surgical approach is a developing technology,...
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Is "treat your child normally" helpful advice for parents of survivors of treatment of hypoplastic left heart syndrome?
Download2009
Williamson, Deanna L., Rempel, Gwen R., Harrison, Margaret J.
BACKGROUND: Developing technology affords children with complex congenitally malformed hearts a chance for survival. Parents gratefully pursue life-saving options on behalf of their children, despite the risks to the life of their child, and uncertainty about outcomes. Little is known about how...
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Functional outcomes after neonatal open cardiac surgery: comparison of survivors of the Norwood staged procedure and the arterial switch operation
Download2010
Robertson, C., Alton, G., Rempel, G., Newburn-Cook, C., Norris, C.M.
Background: Improvements in long-term survival of children undergoing the Norwood staged procedure and the arterial switch operation have resulted in the need to prepare these at-risk children for each stage of their developmental trajectory, including school readiness. This study describes and...
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2012
Rempel, G., Magill-Evans, J., Rogers, L.G., Ravindran, V.
The purpose of the study was to conceptualize the needs of parents of young children with hypoplastic left heart syndrome (HLHS) to provide a theoretical framework to informthe development of future parent interventions. Participants were parents and grandparents (n = 53) of 15 young children who...