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Skip to Search Results- 21Bubela, Tania
- 9Caulfield, Timothy
- 4Boon, Heather
- 2Knowles, Lori
- 2Koper, Megan
- 2McCabe, Christopher
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Reflections on the Cost of "Low-Cost" Whole Genome Sequencing: Framing the Health Policy Debate
Download2014-10-24
Miller, Fiona A., Hogarth, Stuart, Evans, Jim, McCabe, Christopher, Pullman, Daryl, Joly, Yann, Szego, Michael J., Bubela, Tania, Fishman, Jennifer, Sankar, Pamela, Cook-Deegan, Robert, Biesecker, Barbara, Ravitsky, Vardit, Borry, Pascal, K. Cho, Mildred, Ungar, Wendy, J., Ossorio, Pilar, Kato, Kazuto, Wilson, Brenda, McGuire, Amy, Soo-Jin Lee, Sandra, Caulfield, Timothy, Rothenberg, Karen, Rousseau, Francois, Etchegary, Holly, Carroll, June C.
The cost of whole genome sequencing is dropping rapidly. There has been a great deal of enthusiasm about the potential for this technological advance to transform clinical care. Given the interest and significant investment in genomics, this seems an ideal time to consider what the evidence tells...
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2014-11-12
Bubela, Tania, DeBow, Suzanne, Caulfield, Timothy
The analysis of Parliamentary debates provides the opportunity to assess the political context of Canadian legislation, particularly in controversial areas such as stem cell research. Parliamentary debates surrounding the recent Assisted Human Reproduction Act,1 which lasted nearly a decade, were...
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2014-11-12
Caulfield, Timothy, Bubela, Tania, Fernando, Kanchana
Media coverage of politics often comments on the decline of the public’s trust in government institutions. There is a notion that public trust of government is steadily decreasing. Many factors contribute to this reduced trust, including: unhappiness with government performance, negativity of...
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Science Communication in Transition: Genomics Hype, Public Engagement, Education and Commercialization Pressures
Download2014-11-14
This essay reports on the final session of a 2-day workshop entitled ‘Genetic Diversity and Science Communication’, hosted by the CIHR Institute of Genetics in Toronto, April 2006. The first speaker, Timothy Caulfield, introduced the intersecting communities that promulgate a ‘cycle of hype’ of...
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Access and Benefits Sharing of Genetic Resources and Associated Traditional Knowledge in Northern Canada: Understanding the Legal Environment and Creating Effective Research Agreements
Download2014-10-24
Guebert, Jenilee, Bubela, Tania, Jardine, Cynthia, Geary, Janis
Background. Research in northern Canada focused on Aboriginal peoples has historically benefited academia with little consideration for the people being researched or their traditional knowledge (TK). Although this attitude is changing, the complexity of TK makes it difficult to develop...
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2014-11-12
Bubela, Tania, Taylor, Benjamin
In 2004, the International Human Genome Sequencing Consortium published its scientific description of the finished human genome sequence containing 20,000 to 25,000 protein-coding genes. The Human Genome Project (HGP), through political rhetoric and publicity, was portrayed as an end in itself,...
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Challenges for Intellectual Property Management of HIV Vaccine-Related Research and Development: Part 2, The Canadian Context
Download2014-11-14
Patten, San, Bubela, Tania, Knowles, Lori
This paper builds upon the key issues identified in Part One of this series of two papers on“Challenges for Intellectual Property Management of HIV Vaccine-Related Research and Development” [hereinafter, Part One]. Following that review of the global literature and consultations with...
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2014-11-14
Bubela, Tania, Caulfield, Timothy
Many commentators have expressed concern regarding the sensationalistic reporting of biomedical stories by the popular press. It has been suggested that inaccurate or exaggerated reporting can have an adverse impact on public understanding, creating unwarranted hope or fears, and the development...
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Legal Agreements and the Governance of Research Commons: Lessons from Materials Sharing in Mouse Genomics
Download2014-10-24
Omics research infrastructure such as databases and bio-repositories requires effective governance to support pre-competitive research. Governance includes the use of legal agreements, such as Material Transfer Agreements (MTAs). We analyze the use of such agreements in the mouse research...
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Lost in Translation: The Canadian Access to Medicines Regime from Transnational Activism to Domestic Implementation
Download2014-11-14
Bubela, Tania, Morin, Jean-Frederic
Canada was the first country to implement the WTO Decision of August 30, 2003, authorizing the export of generic drugs manufactured under a compulsory license to developing countries in response to a proposal brought forward by non-governmental organizations (NGOs) that now claim dissatisfaction...