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- 2Grounded theory
- 1Congenital heart disease
- 1Family caregiving
- 1Heart transplantation
- 1Hypoplastic left heart syndrome
The purpose of this study is to describe the process of parenting a child with life-threatening heart disease. Despite advances in pediatric cardiac sciences, hypoplastic left heart syndrome remains difficult and controversial to treat. The Norwood surgical approach is a developing technology,...
Family caregiving is central in the heart transplant (HT) process. METHOD: Using a constructivist grounded theory approach, study data were collected from 12 health professionals and 15 families in which one member was a HT recipient throughout three phases of the HT process. FINDINGS: Our...