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The right to control and access genetic research information: Does McInerney offer a way out of the consent/withdrawal conundrum?Download
The article examines the privacy and access to information issues have emerged in relation to the collection and use of human tissue for genetic and cell-based research in Canada. Topics discussed include individuals' rights of access to and control over the research use and disclosure of genetic...
There is significant public interest in the outcomes of genetic research. However, there is also a great deal of concern that genetic research and associated realms will foster the use and disclosure of personal health and genetic information in ways that undermine protected privacy interests....