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Permanent link (DOI): https://doi.org/10.7939/R3XD3H

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Individualized Health Related Quality of Life Measures: their use in children and their psychometric properties Open Access

Descriptions

Other title
Subject/Keyword
Health related quality of life
individualized
quality of life
patient-generated
psychometric properties
pediatric
patient-specific
patient-centered
domain specific
Type of item
Thesis
Degree grantor
University of Alberta
Author or creator
Ishaque, Sana
Supervisor and department
Sunita Vohra (Department of Pediatrics)
Examining committee member and department
Sunita Vohra (Department of Pediatrics)
Charlotte Paterson (School of Social and Community Medicine, University of Bristol)
Jeffrey A. Johnson (Department of Public Health Sciences)
Linda Carroll (Department of Public Health Sciences)
Department
School of Public Health Sciences
Specialization
Clinical Epidemiology
Date accepted
2012-09-28T15:29:44Z
Graduation date
2012-09
Degree
Master of Science
Degree level
Master's
Abstract
Health related quality of life (HRQL) has recently been recognized as an essential outcome of patient-centered care. Individualized HRQL (iHRQL) measures propose a patient-centered approach to HRQL measurement; these measures allow patients to nominate areas of life that are important and then score them from own perspective. The Measure Yourself Medical Outcome Profile (MYMOP) and four of its adaptations are adult iHRQL measuers; in this thesis they were critically appraised and a systematic review was conducted to identify any comparable pediatric measures. Reporting of the validation of MYMOP and its adaptations were inconsistent. Although pediatric iHRQL measures were identified, none of these measures met all currently recommended quality criteria for measurement properties. The available pediatric literature on iHRQL measures does not support their use in children without further validation work. In addition, reported HRQL definitions were heterogeneous, limiting their external validity.
Language
English
DOI
doi:10.7939/R3XD3H
Rights
Permission is hereby granted to the University of Alberta Libraries to reproduce single copies of this thesis and to lend or sell such copies for private, scholarly or scientific research purposes only. Where the thesis is converted to, or otherwise made available in digital form, the University of Alberta will advise potential users of the thesis of these terms. The author reserves all other publication and other rights in association with the copyright in the thesis and, except as herein before provided, neither the thesis nor any substantial portion thereof may be printed or otherwise reproduced in any material form whatsoever without the author's prior written permission.
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File title: -
File author: Sana Ishaque
File language: en-CA
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