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Permanent link (DOI): https://doi.org/10.7939/R3BW4F

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A pilot study on the health related quality of life of symptomatic pediatric patients with celiac disease Open Access

Descriptions

Other title
Subject/Keyword
celiac disease
quality of life
pediatrics
Type of item
Thesis
Degree grantor
University of Alberta
Author or creator
Samuel, Tarah M
Supervisor and department
Norris, Colleen (Nursing)
Examining committee member and department
Norris, Colleen (Nursing)
Turner, Justine (Medicine)
Lasiuk, Gerri (Nursing)
Rempel, Gwen (Nursing)
Department
Faculty of Nursing
Specialization

Date accepted
2011-04-14T20:03:42Z
Graduation date
2011-06
Degree
Master of Nursing
Degree level
Master's
Abstract
Background: Celiac disease affects 1% of the population and the only treatment for CD is life-long adherence to a gluten-free diet, this affects every aspect of life including emotional, social, physical and psychological which in turn has an effect on patient quality of life. Objective: This pilot study is an effort in understanding the quality of life in the pediatric CD population and is a guide for a future, large sample research study. Design & Methods: Thirteen children diagnosed with CD by intestinal biopsy (mean 6 months) and their parent pair were asked to complete a generic QoL questionnaire (EQ-5D-CY) and a disease-specific questionnaire (TACQoL-CD). Results: The overall QoL was higher on the generic questionnaire, while the effects of CD and the GFD resulted in a lower quality of life as determined by the TACQoL-CD. Future research with a large sample at multiple timepoints is imperative.
Language
English
DOI
doi:10.7939/R3BW4F
Rights
License granted by Tarah Samuel (tarah.samuel@albertahealthservices.ca) on 2011-04-14T18:49:54Z (GMT): Permission is hereby granted to the University of Alberta Libraries to reproduce single copies of this thesis and to lend or sell such copies for private, scholarly or scientific research purposes only. Where the thesis is converted to, or otherwise made available in digital form, the University of Alberta will advise potential users of the thesis of the above terms. The author reserves all other publication and other rights in association with the copyright in the thesis, and except as herein provided, neither the thesis nor any substantial portion thereof may be printed or otherwise reproduced in any material form whatsoever without the author's prior written permission.
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