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Permanent link (DOI): https://doi.org/10.7939/R31N7XV93

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A Pediatric Nurse Practitioner's initiative to support parents of children undergoing neurosurgical care: The Neurosurgery Kids Fund Website Evaluation Open Access

Descriptions

Other title
Subject/Keyword
information needs
neurosurgery
parents
website
evaluation
children
informatics
pediatric
health
web analytics
knowledge translation
Type of item
Thesis
Degree grantor
University of Alberta
Author or creator
Vogel, Christina K
Supervisor and department
Scott, Shannon D (Nursing)
Examining committee member and department
Davidson, Sandra (Nursing)
Cranley, Lisa (Nursing)
Olson, Karin (Nursing)
Kleib, Manal (Nursing)
Department
Faculty of Nursing
Specialization

Date accepted
2014-09-29T09:07:08Z
Graduation date
2014-11
Degree
Master of Nursing
Degree level
Master's
Abstract
Parent with children undergoing neurosurgery need access to specialized information as well as support resources. The public is becoming more active in managing their own health care and they often turn to the Internet as a starting point in their quest for health information resources. The Neurosurgery Kids Fund (NKF) in Edmonton, Alberta was created by two pediatric nurse practitioners and launched in 2013 in an effort to help meet the information, support, and resource needs of this unique and special population. Google Analytics, a web analytic software program, an online survey questionnaire, and a focus group interview were used to evaluate parents’ usability and perspectives about a custom designed website about pediatric neurosurgery. Findings included that a health website, if carefully constructed, can meet the information needs and offer support resources to parents with critically ill children. Parents described timing in their child’ illness trajectory as a determinant to when they used the Internet to gain health information about their child’s medical condition or accessing support resources. Factors influencing avoidance of the Internet included fear, uncertainty, and being advised against it by healthcare professionals. The most frequently identified reason for accessing the NKF website was for information on Camp Everest. The next most frequently identified reasons were for medical, social support, and resource information. Parents reported accessing the NKF website regularly and will continue to use it in the future. Nurses and Advanced Practice Nurses (APNs) are now charged with assessing how and what parents are seeking online to meet their needs, and helping to direct them to safe, credible and reliable health websites. Further, issues in the future will revolve around how healthcare professionals are to evaluate health websites to recommend to their patients and parents.
Language
English
DOI
doi:10.7939/R31N7XV93
Rights
Permission is hereby granted to the University of Alberta Libraries to reproduce single copies of this thesis and to lend or sell such copies for private, scholarly or scientific research purposes only. Where the thesis is converted to, or otherwise made available in digital form, the University of Alberta will advise potential users of the thesis of these terms. The author reserves all other publication and other rights in association with the copyright in the thesis and, except as herein before provided, neither the thesis nor any substantial portion thereof may be printed or otherwise reproduced in any material form whatsoever without the author's prior written permission.
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