ERA

Download the full-sized PDF of Problematising care burden research.Download the full-sized PDF

Analytics

Share

Permanent link (DOI): https://doi.org/10.7939/R3XD0R45P

Download

Export to: EndNote  |  Zotero  |  Mendeley

Communities

This file is in the following communities:

Nursing, Faculty of

Collections

This file is in the following collections:

Health Equity

Problematising care burden research. Open Access

Descriptions

Author or creator
Purkis, M. E.
Ceci, C.
Additional contributors
Subject/Keyword
care-giver burden
problematisation
dementia
Type of item
Journal Article (Published)
Language
English
Place
Time
Description
In this paper we use Alvesson and Sandberg’s strategy of problematisation to analyse the assumptions embedded in the development and use of the concept of ‘care-giver burden’.We do this in order to develop an explanation as to why decades of research into the experience of providing home-based care to a family member with dementia has had little effect in relieving or reducing the ‘burden’ of that care. Though some part of this is undoubtedly political, our analysis suggests that key assumptions of the research limit both knowledge development and intervention effectiveness. Especially problematic are first, an overriding focus on the isolated care-giver– recipient dyad as the appropriate object of inquiry and target of intervention, and second, an absence of an analysis of the materiality of care and care-giving practices. The heterogeneity of care situations, including interrelations among people, technologies, objects, spaces and other organisational worlds, appear in much of the research primarily as methodological problems, variables to be subdued through a more rigorous application of method. The high volume of research and acknowledged low impact of interventions, however, suggests that rethinking the nature of care practices, and how we come to know about them, is necessary if we are to develop and implement strategies that will contribute to better outcomes for people.
Date created
2014
DOI
doi:10.7939/R3XD0R45P
License information
Rights
© 2014 Cambridge University Press. This version of this article is open access and can be downloaded and shared. The original author(s) and source must be cited.
Citation for previous publication
Purkis, M. E., & Ceci, C. (2014). Problematising care burden research. Ageing and Society, 1-19. doi: 10.1017/S0144686X14000269.
Source
Link to related item

File Details

Date Uploaded
Date Modified
2015-05-20T07:00:00.412+00:00
Audit Status
Audits have not yet been run on this file.
Characterization
File format: pdf (Portable Document Format)
Mime type: application/pdf
File size: 312933
Last modified: 2015:10:12 18:55:28-06:00
Filename: AS_2014_1_101017.pdf
Original checksum: 00a33824785a4a374ae2b9cf8e679188
Well formed: true
Valid: false
Status message: Invalid dictionary data for page offset=196600
Activity of users you follow
User Activity Date