Download the full-sized PDF
Permanent link (DOI): https://doi.org/10.7939/R3ZC7S17B
This file is in the following communities:
|Nursing, Faculty of|
This file is in the following collections:
Making care decisions in home-based dementia care: Why context matters Open Access
- Author or creator
- Additional contributors
- Type of item
- Journal Article (Published)
The hours of unpaid elder care by family members are projected to triple by 2038. Because living with dementia can inhibit decision-making abilities, family members are often besought to assist in this process. In this ethnographic study, relationships within home-based dementia care were critically examined through face-to-face interviews and participant observations with clients, family caregivers, and home care providers (n = 51). The findings revealed how the formalized home care system contextually imposes decisions, and revealed three themes: (1) accommodating clinically defined competence/incompetence, (2) making untimely decisions, and (3) reinforcing exclusion in decision making. These themes shed light on how cultural values (competency), beliefs (immutability of the system), and practices (timing of decisions) of the home care system are ultimately deterministic in decision making for persons with dementia and caregivers. Additional attention to the collaborative and inclusive practices of all family members in dementia home care is imperative in order to optimize health.
- Date created
- License information
- © 2012 Cambridge University Press. This version of this article is open access and can be downloaded and shared. The original author(s) and source must be cited.
- Citation for previous publication
St-Amant, O., Ward-Griffin, C., DeForge, R.T., Oudshoorn, A., McWilliam, C., Forbes, D., Klosek, M., & Hall, J. (2012). Making care decisions in home-based dementia care: Why context matters. Canadian Journal on Aging, 31(4), 423-434. doi:10.1017/S0714980812000396.
- Link to related item
- Date Uploaded
- Date Modified
- Audit Status
- Audits have not yet been run on this file.
File format: pdf (Portable Document Format)
Mime type: application/pdf
File size: 96345
Last modified: 2015:10:12 20:59:44-06:00
Original checksum: d3270700aa3ab0daa4cea5b123f5dfb2
Well formed: false
Status message: Unexpected error in findFonts java.lang.ClassCastException: edu.harvard.hul.ois.jhove.module.pdf.PdfSimpleObject cannot be cast to edu.harvard.hul.ois.jhove.module.pdf.PdfDictionary offset=1851
Page count: 12