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Permanent link (DOI): https://doi.org/10.7939/R3KK94M23

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Developing a Patient-Driven Arts-Based Knowledge Translation Tool for Parents of Children with Asthma Open Access

Descriptions

Other title
Subject/Keyword
asthma
arts-based knowledge translation
knowledge translation
arts
pediatric
Type of item
Thesis
Degree grantor
University of Alberta
Author or creator
Archibald, Mandy M
Supervisor and department
Hartling, Lisa (Department of Pediatrics)
Scott, Shannon D. (Faculty of Nursing)
Examining committee member and department
Hartling, Lisa (Department of Pediatrics)
Woodgate, Roberta (Faculty of Health Sciences, College of Nursing, University of Manitoba)
Fraser, Kimberly (Faculty of Nursing)
Caine, Vera (Faculty of Nursing)
Scott, Shannon D. (Faculty of Nursing)
Ali, Samina (Faculty of Medicine and Dentistry)
Department
Faculty of Nursing
Specialization

Date accepted
2016-03-16T09:00:33Z
Graduation date
2016-06
Degree
Doctor of Philosophy
Degree level
Doctoral
Abstract
Background: Family-centered education is critical to managing childhood asthma, the most common chronic disease of childhood in North America. Parents are largely responsible for the day-to-day management of their child’s asthma; as such, finding effective ways to educate parents about asthma is essential to improving childhood asthma outcomes. It is known that the information needs of parents of children with asthma are not being met through current educational approaches despite the availability of high quality evidence on childhood asthma management. Patient-driven educational materials that leverage the power of the arts show promise in communicating health information, and may be useful for parents of children with asthma. However, arts-based knowledge translation approaches are in their infancy, and no such strategy has been developed for parents of children with asthma. Purpose: The purpose of this dissertation is to identify the information needs of parents of children with asthma, use these data to develop an arts-based educational material (i.e., arts- based knowledge translation tool), and thereby contribute to the emerging knowledge base of arts-based knowledge translation. Methods: This dissertation consists of four prototypes of an arts-based knowledge translation tool and four related papers: (I) a state-of-the- science review of the literature to determine the information needs of parents of children with asthma; (II) an interpretive descriptive qualitative study on the information needs and experiences of 21 parents of children with asthma, representing diverse backgrounds and stages of the illness trajectory; (III) a methods paper which outlines the process and challenges associated with developing a patient-driven arts-based knowledge translation tool; and (IV) a theoretical paper where a classification schema for arts- based knowledge translation strategies is developed. Findings and Conclusions: The following four knowledge gaps were identified and addressed through this dissertation: (I) knowledge about the information needs of parents of children with asthma was lacking in previous research; (II) the information needs of parents of children with asthma are not being addressed through current educational approaches; (III) innovative educational approaches to knowledge translation, such as arts-based approaches, may hold promise in childhood asthma but have not been developed or discussed; and (IV) the theoretical basis of arts-based knowledge translation approaches is underexplored. In this dissertation I address these limitations by identifying extant research on parents information needs in childhood asthma (paper one), using these findings to inform a qualitative research study of parents’ information needs (paper two), developing four prototypes of a patient-driven arts-based knowledge translation tool for parents of children with asthma based on qualitative findings and best evidence about asthma management (paper three; appendices A through E), and developing an arts-based knowledge translation classification schema based on the mechanisms underlying these approaches (paper four). Through this research, I illustrate that parents of children with asthma have pervasive, unmet information needs and information deficits of varying types, which negatively impacts asthma management, child and family well-being. I demonstrate support for developing the patient-driven arts-based knowledge translation tool and present conceptual and pragmatic complexities associated with this process. These findings contribute to childhood asthma management through a creative and patient-centered approach, while substantively contributing theoretical and procedural knowledge to the growing domain of arts-based knowledge translation.
Language
English
DOI
doi:10.7939/R3KK94M23
Rights
This thesis is made available by the University of Alberta Libraries with permission of the copyright owner solely for the purpose of private, scholarly or scientific research. This thesis, or any portion thereof, may not otherwise be copied or reproduced without the written consent of the copyright owner, except to the extent permitted by Canadian copyright law.
Citation for previous publication
Archibald, M., & Scott, S. (2014). The information needs of North-American parents of children with asthma: A state-of-the-science review of the literature. Journal of Pediatric Health Care, 12, 5-13. doi:10.1016/j.pedhc.2012.07.003Archibald, M., Caine, V., Ali, S., Hartling, L., & Scott, S. (2015). What is left unsaid: An interpretive description of the information needs of parents of children with asthma. Research in Nursing and Health, 38, 19-28. doi:10.1002/nur.21635Archibald, M., Caine, V., & Scott, S. (2014). The development of a classification schema for arts-based approaches to knowledge translation. Worldviews on Evidence Based Nursing, 11, 316-324. doi:10.1111/wvn.12053

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