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Permanent link (DOI): https://doi.org/10.7939/R3251FM01

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Hope against hope: Exploring the hopes and challenges of rural female caregivers of persons with advanced cancer. Open Access

Descriptions

Author or creator
Williams, A.
Duggleby, W.
Eby, J.
Cooper, R.
Hallstrom, L.
Holtslander, L.
Thomas, R.
Additional contributors
Subject/Keyword
hope
palliative and end of life care
caregiving
rural nursing
narrative research
Type of item
Journal Article (Published)
Language
English
Place
Time
Description
Background This paper focuses on the qualitative component of a study evaluating a hope intervention, entitled Living with Hope Program (LWHP), designed to foster hope in female caregivers of family members living with advanced cancer. The purpose of this research is to share, in the form of a story, the experiences of rural female caregivers caring for family members with advanced cancer, focusing on what fosters their hope. Hope is a psychosocial and spiritual resource that has been found to help family caregivers live through difficult transitions and challenges. Methods Twenty-three participants from rural Western Canada completed daily journal entries documenting their hopes and challenges. Cortazzi’s (2001) method of narrative analysis was used to analyze the data, which was then transcribed into a narrative entitled ‘hope against hope.’ Results The journal entries highlighted: the caregivers’ hopes and what fostered their hope; the various challenges of caregiving; self-care strategies, and; their emotional journey. Hope was integrated throughout their entire experience, and ‘hope against hope’ describes how hope persists even when there is no hope for a cure. Conclusions This research contributes to the assessment of caregiver interventions that impact hope and quality of life, while illustrating the value of a narrative approach to both research and practice. Journaling may be particularly valuable for rural caregivers who are isolated, and may lack direct professional and peer support. There is an opportunity for health professionals and other providers to foster a relationship of trust with family caregivers, in which their story can be told openly and where practitioners pay closer attention to the psychosocial needs of caregivers.
Date created
2013
DOI
doi:10.7939/R3251FM01
License information
Rights
This is an open access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
Citation for previous publication
Williams, A., Duggleby, W., Eby, J., Cooper, R., Hallstrom, L., Holtslander, L., & Thomas, R. (2013). Hope against hope: Exploring the hopes and challenges of rural female caregivers of persons with advanced cancer. BMC Palliative Care, 12(1), 44.
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