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Permanent link (DOI): https://doi.org/10.7939/R3GB1XQ0M

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Family members providing home-based palliative care to older adults: The enactment of multiple roles Open Access

Descriptions

Author or creator
Clemmer, S.
Ward-Griffin, C.
Forbes, D.
Additional contributors
Subject/Keyword
Palliative care
Qualitative secondary analysis
Family
Caregivers
Interpretive research
Community
Aging
Type of item
Journal Article (Published)
Language
English
Place
Time
Description
Canadians are experiencing increased life expectancy and chronic illness requiring end-of-life care. There is limited research on the multiple roles for family members providing home-based palliative care. Based on a larger ethnographic study of client-family-provider relationships in home-based palliative care, this qualitative secondary analysis explores the enactment of multiple roles for family members providing home-based palliative care to seniors with advanced cancer. Family members had multiple expectations to provide care but felt their expectations of services were unmet. The process of enacting multiple roles was depicted by three interrelated themes: balancing, re-prioritizing, and evolving. Positive and negative health responses resulted from attempts to minimize personal health while simultaneously maintaining health. \"True\" family-centred care was found to be lacking, but should be a goal of health professionals involved in end-of-life care.
Date created
2008
DOI
doi:10.7939/R3GB1XQ0M
License information
Rights
© 2008 Cambridge University Press. This version of this article is open access and can be downloaded and shared. The original author(s) and source must be cited.
Citation for previous publication
Clemmer, S., Ward-Griffin, C., & Forbes, D. (2008). Family members providing home-based palliative care to older adults: The enactment of multiple roles. Canadian Journal on Aging, 27(3), 267-283. doi: 10.3138/cja.27.3.267.
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