ERA

Download the full-sized PDF of The quality of life of children with Fetal Alcohol Spectrum Disorders and/or prenatal alcohol exposure and the impact of the disability on families and caregiversDownload the full-sized PDF

Analytics

Share

Permanent link (DOI): https://doi.org/10.7939/R33015

Download

Export to: EndNote  |  Zotero  |  Mendeley

Communities

This file is in the following communities:

Graduate Studies and Research, Faculty of

Collections

This file is in the following collections:

Theses and Dissertations

The quality of life of children with Fetal Alcohol Spectrum Disorders and/or prenatal alcohol exposure and the impact of the disability on families and caregivers Open Access

Descriptions

Other title
Subject/Keyword
LAQ-G
PedsQL
Fetal Alcohol Spectrum Disorders
childhood disability
prenatal alcohol exposure
FASD
caregiver stress
quality of life
caregivers
PAE
Pediatric Quality of Life Inventory
FAS
family impact
Generic Lifestyle Assessment Questionnaire
Type of item
Thesis
Degree grantor
University of Alberta
Author or creator
Denys, Kennedy A
Supervisor and department
Rasmussen, Carmen (Pediatrics)
Examining committee member and department
Pei, Jacqueline (Educational Psychology)
Nicholas, David (Pediatrics)
Yager, Jerry (Pediatrics)
Department
Medical Sciences-Paediatrics
Specialization

Date accepted
2013-01-28T14:01:57Z
Graduation date
2013-06
Degree
Master of Science
Degree level
Master's
Abstract
There is little research on the quality of life of children prenatally exposed to alcohol or the impact on families and caregivers. Participants (aged 6 - 16) included 39 children with Fetal Alcohol Spectrum Disorders (FASD), 21 with prenatal alcohol exposure (PAE, not qualifying for an FASD diagnosis), and 29 typically developing controls. Children and caregivers completed the Pediatric Quality of Life Inventory (PedsQL), measuring the child’s quality of life, and caregivers completed the Generic Lifestyle Assessment Questionnaire (LAQ-G), measuring the impact of childhood disability on the family. Children with FASD and PAE had significantly lower ratings of quality of life and a higher impact on the family than the controls in most areas, but the two groups did not differ significantly from each other. These findings show that both FASD and PAE negatively impact quality of life and have measurable impacts on families and caregivers.
Language
English
DOI
doi:10.7939/R33015
Rights
Permission is hereby granted to the University of Alberta Libraries to reproduce single copies of this thesis and to lend or sell such copies for private, scholarly or scientific research purposes only. Where the thesis is converted to, or otherwise made available in digital form, the University of Alberta will advise potential users of the thesis of these terms. The author reserves all other publication and other rights in association with the copyright in the thesis and, except as herein before provided, neither the thesis nor any substantial portion thereof may be printed or otherwise reproduced in any material form whatsoever without the author's prior written permission.
Citation for previous publication

File Details

Date Uploaded
Date Modified
2014-04-29T16:31:05.035+00:00
Audit Status
Audits have not yet been run on this file.
Characterization
File format: pdf (Portable Document Format)
Mime type: application/pdf
File size: 998302
Last modified: 2015:10:12 19:00:59-06:00
Filename: Denys_Kennedy_Spring 2013.pdf
Original checksum: 9667dcf86ed578c86b3194a7167c159c
Well formed: true
Valid: true
File title: Denys_Kennedy_Spring 2013
File author: Kennedy
Page count: 75
Activity of users you follow
User Activity Date