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Permanent link (DOI): https://doi.org/10.7939/R3348GP3D

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"Her world gets smaller and smaller with nothing to look forward to”: Dimensions of social inclusion and exclusion among rural dementia care networks Open Access

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Author or creator
Forbes, D.A.
Ward-Griffin, C.
Kloseck, M.
Mendelsohn, M.
St-Amant, O.
DeForge, R.
Clark, K.
Additional contributors
Subject/Keyword
Living with dementia
Rural setting
Social inclusion and exclusion
Type of item
Journal Article (Published)
Language
English
Place
Time
Description
The purpose of this research was to critique the nature of rural dementia care from the perspectives of persons with dementia, their family caregivers and home care providers through a social inclusion/exclusion lens. A critical gerontology approach within a human rights framework (Townsend, 2006) was used. Three rural dementia care networks were included consisting of persons with dementia (n=3), spouse caregivers (n=3), adult children (n=9), grandchildren (n=2) and home care providers (n=3). Thematic analysis (Lubrosky, 1994) revealed three overarching inclusion/exclusion themes. Members of the dementia care network were being denied and afforded opportunities with respect to: (i) experiencing quality relationships among network members; (ii) having a voice in dementia care decisions; and (iii) participating in care, social, and work activities. This study contributes evidence that challenges the myth of the idyllic nature of rural places. Findings revealed the diversity of lived experiences within dementia care network members who described both positive (e.g., close community ties, life-long work opportunities) and negative (e.g., stigma of dementia, dangers of rural setting) aspects of the link between living in a rural setting and living with dementia.
Date created
2011
DOI
doi:10.7939/R3348GP3D
License information
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© 2011 Binghamton University. This version of this article is open access and can be downloaded and shared. The original author(s) and source must be cited.
Citation for previous publication
Forbes, D.A., Ward-Griffin, C., Kloseck, M., Mendelsohn, M., St-Amant, O., DeForge, R., & Clark, K. (2011). "Her world gets smaller and smaller with nothing to look forward to”: Dimensions of social inclusion and exclusion among rural dementia care networks. Online Journal of Rural Nursing and Health Care,11(2), 27-42.
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